SOS EB KIDS

SUNDAY APRIL 15TH 2018 IS GOOD DEEDS DAY. IT IS AN ANNUAL TRADITION OF GOOD DEEDS.

All over the world, hundreds of thousands choose to volunteer and help others, putting into practice the simple idea that every single person can do something good, be it large or small, to improve the lives of others and positively change the world. This year in the spirit of doing good for others the CrossFit Bell community has partnered with "SOS EB KIDS" to generate awareness and raise money for children suffering with Epidermolysis bullosa.
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SOS EB KIDS MISSION
"Our mission is to alleviate the suffering of Brazilian kids with EB, increasing their quality of life and that of their loved ones, whether through material and emotional support or through information and awareness."
 
 
WHAT IS EB (Epidermolysis bullosa)

EB is a rare and serious genetic illness, noncontagious, for which no cure has been found and it is characterized by acute sensitivity in the skin and mucosal membranes. Patients with EB develop blisters and sores in response to the minor types of skin trauma, a mere touch upon or pressure to their skin, or even just changes in weather. These lesions can be both external and internal. Patients of EB are affectionately referred to as "butterflies," a reference to their fragile skin.